Showing posts with label Accessibility. Show all posts
Showing posts with label Accessibility. Show all posts

Sunday, 2 June 2024

Day 75 - RNZ - Making live events accessible for everyone

Making live events accessible for everyone

By: Culture 101

RNZ: 2.30pm, 2/06/2024


BATS Theatre

Photo: supplied

Live events are often where we come together as communities, sharing passions and considering the issues concerning us. It’s important they’re accessible to all. 

Except they’re not. Many people have impairments that can make it more difficult or impossible to attend live events. Deaf and disability advocates argue in fact it is the society that is creating the disability, not the person. 

A recent 2024 survey in the UK  for example found more than half of people with disabilities face problems while attending live events. 

The issues range from physical access to theatres, toilets, or bars to being able to hear, see, or even simply have time and assistance to get into a venue. 

BATS Theatre in Pōneke Wellington has already developed strong accessibility guidelines and a way to request help online. But thanks to recent funding from ANZ Staff Foundation it has a new programme to make things more accessible via live streaming, captioning and audio description for up to 10 theatre productions between May and July.

Accessibility is also about the work that is programmed. People need to see themselves on stage. This programme is also championing work made by and for deaf and disabled communities.


Jonty Hendry

Photo: supplied

"Theatre has the power to unite and uplift,” says BATS CEO Jonty Hendry. 

“It is our responsibility as artists to ensure that the live theatre experience is accessible to everyone.” 

Broadcasting theatre digitally in real time and on demand got a massive push when Covid hit, but it’s also something this programme is continuing to push. Depending on the production, live captions are also to be displayed on stage or via live streaming. 

Then there are the needs of the blind and low vision communities. BATS includes some audio-described performances. With these, the audio describer gives descriptions of the visual elements in between the dialogue or songs. They narrate what’s happening on stage like the costumes, the set design and where it’s set, as well as body language, facial expression, and movements on the stage by the performers. The audio describer’s narration is transmitted to wireless receivers and headsets worn by the audience members. It doesn’t impact the experience for other audience members.



Helen Vivienne Fletcher and her service dog Bindy 

Photo: supplied

Helen Vivienne Fletcher is a writer, playwright, poet and theatre artist. She's been writing novels since she was 13 and now she has 18 books to her name, including work for children, young adults and adults.  

Fletcher’s production Confessions of a Sleepwalking Insomniac is on the BATS stage and live streamed from 5-9 June. This solo play that Fletcher has written and produced deals with the disabling effect of sleep disorders and her journey to getting an assistance dog. 

The show will not only have a New Zealand Sign Language Interpreter but also audio description, and captioning with the live stream. 

“The disability community is a close-knit group,” Fletcher says.

“As a disabled theatre practitioner, it can be really hard knowing that your production might exclude your friends. With tight budgets, you can end up having to choose which group to exclude, as you can only afford to provide for one type of access needs.”

While there is a long way to go, in Aotearoa New Zealand there’s been a lot of good work in this space in recent years. 

In March, Creative New Zealand launched their Tapatahi Accessibility Policy and Action Plan 2023–2028 working with a reference group of Deaf and disabled artists, policy and disability rights advocates. Arts Access Aotearoa have done significant work with arts producers nationally to improve access. Both Arts Access and playwrights agency Playmarket have published guides to assist the arts to increase accessibility in recent years.

Last Updated 05/06/2024

RESOURCES

Wednesday, 17 April 2024

Day 28 - Blenheim Sun - ‘Financial constraint and an ailing body’

‘Financial constraint and an ailing body’

By Chris Valli

Blenheim Sun: April 17 2024

Lisa Wheeler says living with Multiple Sclerosis (MS) is often described as a journey marked by unpredictable twists and turns reshaping every facet of life. Lisa spoke exclusively to Sun Journalist Chris Valli about recent ‘unconsulted funding cuts and ‘clinging to hope’.

Lisa says while she understands the need for fiscal responsibility and adherence to use of funding guidelines, it is ‘disheartening to face restrictions in accessing medications vital for managing her health’ simply because they fall outside the purview of government subsidies.

Photo: Helen Nickisson.

Blenheim’s Lisa Wheeler says her journey with Multiple Sclerosis began with subtleties, a ‘mere prickly’ in her pinky toes, inconsequential at first glance. Little did she know that it was the first brushstroke in a portrait of challenges that would unfold over the next 22 years.

Symptoms of MS vary from person to person and depend on the location and severity of nerve fibre damage. These often include vision problems, tiredness, trouble walking and keeping balance, and numbness or weakness in the arms and legs. While there is no cure for MS, treatment can reduce symptoms, prevent further relapses and improve quality of life.

Today, Lisa says she finds herself navigating the world as a wheelchair user, reliant on the support of public health services to sustain a semblance of well-being. Her legs now, she explains, feel as though they’ve been infused with concrete, stiffened and hardened by the relentless progression of this condition.

Simple movements that were once taken for granted have become Herculean tasks. Her legs, once half marathon running, now betray her.

They refuse to move on command, and at times, rebel with painful spasms.

What has served as a lifeline is the Individualised Funding which she began this year. Now she has a regimen of care which includes at least twice weekly massages, physiotherapy sessions, weight training with a support person, appropriate equipment, specialist care and unfunded pharmaceuticals. Lisa says these form the cornerstone of her fight against the encroaching deterioration.

“Each piece is a crucial part in the war against the relentless advance of MS. Each has been funded just in the last year. Prior to that, and for the past 21 years, we’ve incurred the whole cost of this disease; not only losing my function but also earning debt,” she says.

To those who may wonder why such interventions are necessary, she invites Sun readers to glimpse into the reality of living with MS.

“It’s not just about managing symptoms; it’s about reclaiming agency over a body that seems determined to betray. Each massage eases the grip of tension, each physiotherapy session coaxes reluctant muscles into movement, each weight training session fortifies the weakening body and every aspect of support increases my ability to be satisfied with life,” she informs.

“In the midst of this ongoing battle with MS not only do I need to fight my body and this disease, but also bureaucracy. The unprecedented, unconsulted cuts imposed by the Ministry of Disabled People have redacted the ability to choose what services, supports, or equipment meets individual needs.”

“These cuts are felt in the reduction of available vital services. They are the reason why I now find myself grappling with an impossible choice—weighing the importance of physiotherapy, weight training, and prescription drugs against the harsh reality of financial constraints and a failing body.”

Lisa and others say they were left shell-shocked as they learned via social media last month about changes, which saw all purchases – including respite items, travel related costs for carers, as well as any purchases that may be made to give carers a break – axed temporarily with no restart given.

Lisa says physiotherapy now lies beyond reach because her funding does not include therapeutic treatments; with Ministry of Disabled People claiming Allied Health should ‘provide that service when Allied Health is unable to provide the frequency required to make a functional difference.’

“It seems puzzling that while I can partake in horse riding therapy with the RDA to address issues of stiffness, tightness, and immobility in my physical body, I am unable to access through the use of my funding physiotherapy,” she says.

“Then there are the prescription drugs—lifelines in the fight against MS, now rendered inaccessible because they are not funded by Pharmac.

These are not optional medications; they are essential tools in managing symptoms and staving off the progression of the disease.”

Lisa says based on the provided guidelines and information, Individualised

Funding (IF) is intended to provide financial support to individuals with disabilities to enable them to access goods and services that contribute to living a good life, overcoming barriers associated with their impairment, and improving their overall quality of life.

“It is designed to offer flexibility and autonomy, allowing individuals to tailor their support to their unique needs and aspirations, within the parameters of reasonableness, cost-effectiveness, and relevance to disability-related needs. The new changes make these statements laughable.”

“I find it absurd that I can ride a horse at RDA for respite purposes.

The same therapeutic activity wouldn’t be allowed if deemed essential for my own well-being under the new funding changes.

It’s almost like saying I can enjoy the benefits of horse riding, but only if it’s not actually therapeutic.” 

Meanwhile, an annual automotive charity event called Bangers to Bluff hopes to raise awareness for MS sufferers. The event started April 9 – April 20 with 16 cars worth less than $2000 embarking on the journey from Auckland to Invercargill, to raise money for Multiple Sclerosis New Zealand.

To learn more about Bangers to Bluff and how Sun readers can get involved, visit https://fundraise. msnz.org.nz/event/bangers-tobluff/home

Footnote: MP Priyanca Radhakrishnan, spokesperson for Disability Issues, read Lisa’s poem to Waikaha (Ministry of Disabled People) at an open meeting in Auckland last week regarding Lisa and others frustrations with MS, which was streamed live on Facebook. A short extract from the poem as follows;

Funding changes oh what a sight.
The guidelines disempower and that’s not right.
One day we’re covered the next we’re not.
As if the impact of disability is just forgot.

From equipment to travel to meds so dear.
The changes now seem to instil fear.
We ask with worry how will this end?
Having to navigate this maze round every bend.

Last Updated 17/04/2024

RESOURCES

Monday, 15 April 2024

Day 26 - RNZ - Accessibility impacting disabled students' learning, representatives say

Accessibility impacting disabled students' learning, representatives say

By Pretoria Gordon

RNZ: 7:20pm, 15 March 2024

Accessibility issues with some facilities at universities and polytechnics is taking a toll on disabled students' ability to study, the National Disabled Students' Association says.

Accessibility issues with some facilities at universities and polytechnics is taking a toll on disabled students' ability to study, the National Disabled Students' Association says.

Some have even been humiliated by having to be carried into lecture halls, the association, which is calling for better accessibility legislation, says.

The Tertiary Education Commission estimates about 20 percent of tertiary students had some form of disability.

University of Waikato student Nikki van Dijk uses a wheelchair and said getting to her classes was a huge battle.

"A lot of the doors are not automated, a lot of them are quite narrow, so my chair doesn't fit through, so many stairs it's not funny," she said.

"And I know this is a wide-spread issue for a lot of different disabled students."

Van Dijk said she had to plan her papers around what rooms they were in.

"It's quite challenging, and it's quite isolating because you're trying your hardest to complete a degree, and you've got this giant barrier stopping you, and it just makes what can already be quite stressful, an even more stressful time."

But van Dijk said it was not the fault of the university.

She said all universities across New Zealand were doing the best they could with the resources they had. The buildings were either too old to be upgraded or would need substantial renovation.

"Universities are pretty keen to help and do what they can to make things more accessible for us.

"We have the pleasure of having universities that are quite well-established in this country, but as a result there's not a lot to do to change the facilities.

"But sometimes they go, 'Okay, well we could change rooms'. I've heard of that happening - I've seen it happen."

National Disabled Students' Association co-president Sean Prenter called on the government to help.

"We don't have accessibility legislation with teeth to mean that the providers themselves have a responsibility, and so actually disability is at the front of those access conversations, and it's also person-centred," he said.

He said there was currently no way - if you had an issue with accessibility - to monitor, give feedback and then hold government to account "for what is an inaccessible education system".

Van Dijk said it also needed to be more than the bare minimum.

"A lot of it was only considering things like wheelchair access, but there are things like all the fluorescent lights cause seizures, and they triggered nausea for a lot of people such as those with brain injuries, and so any legislation, any policy, needs to have more comprehensive accessibility understanding."

Disability Issues Minister Penny Simmonds said it was incredibly disappointing that tertiary students were facing these barriers.

Whaikaha - the Ministry of Disabled People - was working on the Accessibility for New Zealanders Bill to help, Simmonds said.

"Most of the disabled community were pinning their hopes on making changes to things exactly like that, making public buildings more accessible and putting in place more structure around what's required, but the bill as it stood - as it came back from the select committee - didn't do that," she said.

Simmonds said they were currently taking another look at it.

"We've paused it, and we're doing an analysis of what the legislation in Canada and the US and Australia are like to see what the gaps are, to see whether we actually can amend the legislation as it is, or whether we need to start again."

But Simmonds said they would not be consulting with the disabled community until after accessible legislation overseas was looked at.

Analysis and consultation would be done by the end of the year, she said.

In the meantime, van Dijk said the most helpful thing institutions could do was make lecture recordings universal.

"Lecture recordings have been incredibly useful, so you don't feel like you're missing out," she said.

"Us disabled students in groups are also able to go, 'Okay, we can access this building, let's watch a recording together'."

"A lot of disabled individuals are having to travel for appointments, in and out of hospital, and sometimes they just don't have the capacity to be on campus, so in a way it's actually very, very inclusive to have lecture recordings, and exactly that, it allows them to connect within the disability community with others who are suffering the same issue."

Last Updated 16/04/2024

RESOURCES


Thursday, 11 April 2024

Background - NZ On Air - 'We want to work': National's 'brutal' welfare policy sanctions could harm disabled people

'We want to work': National's 'brutal' welfare policy sanctions could harm disabled people

By Olivia Shivas
olivia.shivas@stuff.co.nz

Stuff: August 20, 2022, • 05:00am


Jordan Langley says disabled people want to work and there shouldn’t be so many barriers to getting into work.

JOHN KIRK-ANDERSON / STUFF

Disabled people want to work but there are often barriers to employment, says a young visually impaired man.

Jordan Langley is concerned disabled people on the Jobseeker benefit would be even more marginalised under National’s proposed Welfare that Works programme, which includes sanctions if people don’t follow a job plan with a job coach.

Implementing sanctions is “pretty brutal” for disabled people and those with health conditions, he said.

He’s faced barriers himself with employment regarding modifications to accommodate his visual impairment.

When he applied for Ministry of Social Development (MSD) funding for a special high-resolution computer he needed to work in IT, the funding was denied.

At the time, MSD defended its decision, saying the programme Langley applied for was intended for people who were not in employment, so he was not eligible.

However, Langley said the funding criteria restricted disabled people and funding should be available to support disabled people staying in their jobs, too. In the end, his employer funded the equipment.

He said transport was another barrier to work.

“If you can’t drive a vehicle and taxis can be more expensive – funding around that is important,” he said.

Rather than disabled people under the Jobseeker benefit getting a job coach and facing sanctions, they should have a case manager to support finding work and to deal with the wider barriers disabled people faced getting a job.

“There are people who want to work, and there shouldn’t be too many barriers to getting into work.”

His comments come after National leader Christopher Luxon said on Newshub Nation that people on the Jobseeker Benefit – including those with a disability – would be sanctioned if they didn’t work with a job coach and participate in a job plan under the programme.

While speaking to media in Timaru earlier this week, Luxon elaborated: “We've got is a major problem in this country where we have huge record job shortages.

“I want to be really clear, even people with health conditions are actually being assessed to say there is a pathway for these people to get to employment within two years.”

When asked if any disabled people were involved in the creation of the Welfare that Works programme, he responded: “We've talked to lots of community organisations, as we've developed that policy over the last few months.”

National’s Welfare that Works policy fact sheet states: “There’s no reason young people who can work shouldn’t be able to find paid employment right now.

“Sanctions play an important role in shaping the incentives faced by Jobseekers,” it stated.

But Hannah McLaren, who lives with a spinal cord injury and uses a mobility scooter, said she’s concerned this programme will force disabled people into the wrong jobs in order to avoid being penalised.

“My peers are worried that they’ll end up in a job that they’re just not capable of doing in order to avoid these sanctions and they’ll end up getting a bad employment record because of it.

“I think it’s disgusting,” she said. “None of it is thoughtful, none of it’s empathetic to someone’s situation.”

Working from home

McLaren said one of the wider issues disabled people face when it comes to employment is public transport.

In Cambridge, where she is based, she said there were four bus services a day but you’re solely reliant on those limited bus hours if you don't drive, and some public transport doesn’t cater for mobility scooters.

McLaren spent “years and years” applying for jobs. She’d come to the point of having a signed contract, but having to wait three months and pay up to $3000 for an occupational therapist report. By the time she’d have the report done, the job would have been given to someone else.

She said she’d like to see an employment policy that takes into account the “disability tax”, that covers the additional costs of having a disability – like counselling, physiotherapist visits and equipment not funded by health providers.


Hannah McLaren said one of the wider issues disabled people face when it comes to employment is transport.

TOM LEE / STUFF

National’s social development spokesperson Louise Upston defended the programme, saying those on the Jobseeker benefit were a group of New Zealanders currently able to work, and expected to be able to work in the future with assistance and support. The policy would not apply to those on the Supported Living Payment benefit.

Upston said she had spoken with disabled people when developing the programme.

When asked if the job coaches would have any disability training, she said she would expect there were some community organisations with experience working with disabled people.

“The job coach is the bridge between the employer,” she said. “So sometimes employers may not understand what people need in terms of a workplace, so the job coach can help be the bridge and ensure that a person is able to apply for and stick with a job … to practically help them to reduce those barriers is really important.”

Regarding measuring success of the programme, Upston said, for some people, that will look like full-time work and for others it would be part-time.

“This is also based on an individual’s plan and it’s a plan they make with their job coach, it’s nothing that’s imposed on them. It’s not something someone else makes up, they have control over it.”

Regarding National’s welfare plan, Social Development and Employment Minister Carmel Sepuloni said: “Christopher Luxon is showing what kind of leader he is. Sanctioning people with disabilities or with serious illness if they can’t work is just unkind. Instead of penalising our sick and disabled, the Government is focused on supporting them into work if they can and helping them achieve their aspirations.

“Our Disability Employment Action Plan is continuing to play a pivotal part in supporting disabled people into employment. We’re already seeing record numbers of people move off benefit and into work. Our approach is working and we stand behind it.”

But despite Sepuloni’s comments, the unemployment rate of working age disabled people is more than double compared to non-disabled people, according to the latest Stats NZ data.

In the June 2022 quarter, the unemployment rate for 15 to 64-year-old disabled people was 7.9%. For non-disabled people in the same age range, the unemployment rate was 3.3%.

Minister for Disability Issues Poto Williams said society has a long way to go to learn the skill sets that disabled people bring to the workplace.

“Disabled people find it difficult to find jobs so they will be the most impacted by the National policy. So it stigmatises disabled people.”

She said what would help disabled people into employment were proactive programmes that engage employers and support disabled people in the initial stages or for however long they need that support.


Minister for Disability Issues Poto Williams said society has a long way to go to learn the skill sets that disabled people bring to the workplace.

ROBERT KITCHIN / STUFF

She said employers might need to make some modifications in the workplace, but they will see the benefit of having disabled employees.

Progammes that help disabled people engage and integrate into employment.”

The Green Party’s social development spokesperson Ricardo Menéndez March said there was no evidence that sanctions support people into meaningful employment.

“The reality is, the groups that are overrepresented in unemployment figures will be those that are harmed the most, including disabled people, Māori, as well as other groups that face barriers into employment.”

The Greens were advocating for an unconditional support system that would remove all sanctions and a more fit-for-purpose employment programme run by MSD and the community.

“I think part of what we are seeing as not working is the intensive case management isn’t really working to people’s strengths,” he said. “If we let people find employment on their own terms, they do tend to stay in employment for longer.”

McLaren now works as a disability adviser for the Covid Healthline and being able to work from home has “changed everything”, she said. It’s meant she can work 40 hours a week, compared to 19 hours a week.

She said disabled people are more likely to be reliable employees because they are used to “proving ourselves twice as hard”. Her advice to employers: “Give us a chance.”

RESOURCES


Tuesday, 9 April 2024

Day 22 - Disabled United - Invercargill Organising Meeting April 8

Notes of Invercargill Organising Meeting 08/04/2024

By Melissa Corbin
Organiser, Disabled United - Invercargill
021 502 504 lisla35@hotmail.com

Today, we held another meeting at Main Street Cafe at 3 p.m. Thank you to those who took time out of their busy days to attend.

National Update:
Mike updated us on what has been happening throughout the country in the last week. He reported that five other groups around the country are sharing Disabled United NZ as a way to reach disabled people and the public and as a way to protect the government funding of disabled groups and support organisations.

Setting up systems to share common knowledge so that anyone can jump on board and replicate what works is fantastic.

Mike will send out a weekly newsletter to update those not on Facebook and others about what is happening in NZ.

Invercargill:
We then discussed what we would like to see happen moving forward as we continue to raise our voices against the recent changes to disability funding by the Government. After some discussion, it was decided that tasks needed to be delegated so we could spread the load amongst ourselves and look after each other.

Below is a list of areas we felt needed to be covered in Invercargill and who is responsible for that task:

Protest Organisers:
Mike will be the main organizer, with support from the Harvey family and Shauna. They are responsible for organizing everything we need and making sure the space is accessible and safe for all.

Media:
Tracy and Carolyn will be assisting with media and are available to share their experience and support anyone doing interviews, etc. Melissa will contact Jack to do an interview on the community radio. Also, Sammy may help with live streaming.

Public Meeting:
Melissa and Gordon will approach possible speakers at a public meeting, including getting people to share their stories and, hopefully, some members of Parliament or others who may be able to clarify what is going on. They will find a venue to hold an event, possibly after the next protest, with suitable access for all. Melissa will contact Darren Ludlow to see if he can help.

Other matters

Posters:
We will share the load by focusing on areas where we live or are close to and distributing them around shops, businesses, etc.

Safety Vests:
The Harvey family will look into getting some high-vis vests printed with Disabled United on the back and a logo on the front.

Communication:
To make it easier, a messenger group under Invercargill Disability United on Facebook will be created. This way, the committee can communicate quickly and more efficiently. 

Our next meeting will be held at 10am on Thursday 18th April at Main Street Cafe.

Saturday, 6 April 2024

Day 19 - Manawatu Standard - Frustration and fears aired at public meeting on disability cuts

Frustration and fears aired at public meeting on disability cuts

By Alecia Rousseau

April 06, 2024, • 05:00am Manawatu Standard

The Government’s recent cuts to the disability sector have left many scared they will not be able to access the support they need.

At a public meeting in Palmerston North on Friday, fears and frustrations were aired as disabled people, their whānau and carers spoke of the “trauma” they felt after the changes were announced on March 18.

The sudden news was posted to social media by Whaikaha, the Ministry of Disabled People, without any community consultation.

The changes impacted the purchasing rules for disabled people and their carers, limiting what they could buy.

Friday’s meeting, organised by the MidCentral Enabling Good Lives leadership team, began with a karakia and slideshow about why the changes happened.

Panel member Natt McLean said prior to Whaikaha becoming a standalone ministry, it had been part of the Ministry of Health.

If funds were overspent, the ministry was able to top them up.

But after it transitioned to its own standalone organisation that was not possible.

She said in Budget 2023, $200m had been included for the disability sector, but an additional 3000 people were brought into the disability system and this money had gone to them.

These people had previously been living isolated and without support.

Peter Allen, who was part of the MidCentral regional leadership group for Enabling Good Lives, said Whaikaha was close to being $65m in the “red zone” at the end of the financial year.

She first knew of funding issues in December, but said the Government wasn’t going to increase funding to maintain support for disabled people and their families “because the Government’s coffers are not an endless open pit”.

But with services now on “pause” while changes were considered, those in the disability community told the meeting their lives were in limbo.

A microphone was passed around allowing people to “vent” their frustrations and many people opened up about the struggles they endured.

One woman broke down as she told the crowd the restrictions would significantly impact her family.

As a solo mum part of her disabled son’s budget was spent on a five-hour drive to his grandparents so he could stay there for a weekend.

It was the only place they could get some respite.

“I can’t understand how I can do that now ... my son deserves to have that.”

There was a lot of confusion about what people were allowed to buy, and many said there was a lack of clarity around the new rules.

They were critical of the ministry and said the way the changes were rolled out had left them traumatised.

More than 26,000 people had signed a petition asking for the changes to be reconsidered.

Allen said the ministry was “very aware of the chaos they have created in our community” and was working on creating clearer guidelines.

He was unsure when those would be released.

An email from Minister of Finance Nicola Willis was also shared with the room, which said it was “important to highlight” no disabled person would lose access to funding for essential items.

This was met with scepticism, with one woman asking: “Who decides what is essential?”

Willis earlier told media any future decisions by the ministry on funding would need to be signed off by Cabinet.

Another public meeting would be held at the Community Leisure Centre on Ferguson St on Monday at 6pm.

RESOURCES

  • MidCentral regional leadership group for Enabling Good Lives  enablinggoodlivesmidcentral@gmail.com

Wednesday, 27 March 2024

Day 9 - The Conversation - Accessibility remains an afterthought – how NZ’s digital health tools risk excluding people with disabilities

Accessibility remains an afterthought – how NZ’s digital health tools risk excluding people with disabilities

Shutterstock
Sally Britnell, Auckland University of Technology

Alongside my career path from a PhD in computer science, work as a nurse and ambulance officer and now a university lecturer in nursing, I have become progressively deafblind.

As a result, I have personal experience navigating New Zealand’s health system, both as an employee and patient living with dual sensory loss.

My experiences provide me with a unique perspective on how important it is to integrate technology well into healthcare practices. Currently, accessibility is often lacking or insufficient, both for staff and patients.

My work focuses on bridging the gap between technology and nursing to make digital health accessible. A broader review of existing research confirms this need: accessibility is often an afterthought in software development, and digital health solutions are designed in a way that makes them inaccessible.

Accessibility must be part of early software design

One in four New Zealanders lives with a disability. Despite this significant portion of the population, digital solutions often overlook their needs.

For example, the YourRide taxi booking app’s launch last year has created difficulties for total mobility scheme card holders, with some struggling to access their taxi service equitably. With 89,000 individuals relying on the scheme in 2022, it is essential that they have equity in access to taxi transportation.

The app does not cater for total mobility card holders and a national taxi company is making them call by phone to confirm their status. This is further complicated by a malfunctioning text-as-taxi-approaches system, leaving those without app access no way of knowing how far away the taxi is without phoning the company.

This system has led to delays, multiple phone calls and missed appointments. Had the app been designed with total mobility card holders from the beginning, these issues could have been avoided.

The lack of emphasis on accessibility often begins at the early stages of software development, which leads to inaccessible digital health solutions.

While major companies like Apple and Microsoft have proprietary accessibility libraries, their usage is not widespread and considerably variable. Some accessibility test tools exist for web-based applications, but their implementation varies. And not all digital health solutions are web-based and guidelines for native applications are scarce.

It is important to integrate accessibility in the design phase of any project. One of the recommendations of a Digital Health Leadership Summit held in 2023 was that New Zealand should adopt a national strategy for accessibility in digital health, moving away from the fragmented approach.

Community engagement and collaboration are crucial to informing design in digital health and enhancing data collection and analysis. Projects such as Hira, which put in place the foundations for initiatives such as My Health Record, foster inclusivity, user-centred design, legislative compliance and equitable resource access.

Considering accessibility in the design phase and upholding ethical standards in digital health is essential. Flexible and adaptable solutions that cater to diverse access needs are necessary, along with clear information, navigation and personalisation to meet the specific requirements of individuals with disabilities.

Gaps between recommendations and reality

Unlike some other countries, New Zealand does not have legislation explicitly addressing or policing accessibility.

In 2022, the United Nations examined New Zealand’s performance under the Convention on the Rights of Persons with Disabilities and highlighted:

… a lack of recognition, across all government portfolio areas, that disability is a whole-of-government responsibility.

The UN also stressed that legislative and policy frameworks on disability should align with the Treaty of Waitangi to ensure active involvement in decision making and consultation with Māori with disabilities. It recommended a national strategy to increase awareness and promote respect for the rights and dignity of people with disabilities.

The discrepancy between recommendations and reality may be related to employment. Only 44% of people with disabilities are employed, compared with 69% of those without disabilities. This disparity in employment rates suggests a need for greater inclusivity and support for individuals with disabilities in the workforce.

A girl in a doctor's room using sign language
sign languge. Getty Images/PeopleImages

Perceptions of disability

In healthcare, staff with access needs appear to be undeserved.

My first experience of this was when I worked as a nurse. I had disclosed my disability and was using a magnifying glass to check drug vials when giving medications. I had made no errors.

But the charge nurse nevertheless told me she no longer wanted me to use a magnifying glass as it decreased the public’s trust. If I had been quicker off the mark, I could have asked how a magnifying glass differs from reading glasses.

Her attitude raises important considerations regarding the perception of disability within healthcare environments. Her request to restrict the use of a tool that allowed error-free medication checks highlights a potential lack of understanding or sensitivity towards the needs of individuals with disabilities.

Last year, a German survey using sign language found that a lack of understanding of disability needs meant that deaf people were choosing not to engage with the healthcare system.

A similar survey in New Zealand could provide valuable insights into the barriers deaf people face. It could compare the effectiveness of digital versus face-to-face consultations and exploring the use of digital solutions such as closed captions in tele-health consultations.

Lingering undercurrents of discrimination

The historical treatment of individuals with disabilities within pākehā society was marked by a pervasive view of disability as a deficiency.

Rooted in the medical model of health which historically focused on deficits and impairments, the prevailing attitudes towards disability have often been shaped by societal norms that prioritise able-bodiedness. This has led to the marginalisation and stigmatisation of individuals with disabilities, who were seen as a deviation from the norm.

The legacy of these historical perceptions continues to linger. Despite advancements in understanding and awareness, an undercurrent of discrimination and exclusion prevails. This is reflected in the limited access to resources, opportunities and support systems available to individuals with disabilities.

People with disabilities have a long history of distrust in the health and disability systems in New Zealand. Improving education and training, building trust and promoting effective data sharing are essential for enhancing their care and experiences.

My goal is to advocate for this change. I want to ensure that digital health tools are designed with an equity lens, where disability, just like culture and gender, is given due consideration. This isn’t just about technology. It’s about reshaping our society’s approach to health, disability and inclusivity.The Conversation

Sally Britnell, Senior Lecturer in Nursing, Auckland University of Technology

This article is republished from The Conversation under a Creative Commons license. Read the original article.